Louise from Michigan

I care for my husband, Michael, who started his illness in 2016. He was already in kidney failure and dialysis three days a week. Michael had problems with blood circulation and his right leg had to be amputated after a series of trial and error. In 2017-2018 he became ill again and his left leg was amputated. He suffered a small stroke, upper GI bleed and other serious conditions. Now he is a double amputee. This year he was diagnosed with paralyzed vocal cords. He will have a tracheotomy. My daughter and I are now being trained for that. We also care for his brother with dementia and a daughter with MS.

I commend all caregivers. You never know when life will throw you in the caregiving journey. We stay on prayers and try to be always encouraging and positive. Some days we just want to cry. We are learning to take care of ourselves to be strong while caregiving, with some of our own illnesses. Stress is the biggest problem. Caregiving can be overwhelming.

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