Laila from New York
Hello! My name is Leila and my mother has Dementia and other medical conditions. Medicaid does provide a visiting care giver for 5-7 hours a day. Because of that I had to cut my work hours down and no longer can work full time and no longer get full time benefits. When the person that's supposed to take care of mom calls in (which is happening a lot) I have to call in and stay with mom. I feel terrible that it upsets me when this happens but I am truly struggling financially by being mom's sometime caregiver. I'm afraid that at some point they will let me go from my job. My mom Alaina, sometimes says things about me not being there with her and I try not to let it get to me knowing her illness but it still hurts inside. I truly wish I could be with her more or even full time. Sadly even when I'm with her I can't take her out many places but we do try and get in free activities as much as we can.
What do people do? I feel like a bad daughter at times. I definitely give care givers a lot of credit. I'm not full time and it's tough. I'm just happy regardless of everything thst I can spend some time with her while she's still here.