Yazmina from Florida

My mother has lived 20 years with Parkinson's Disease and I have been taking care of her. She was able to self-handle until 7 years ago when she fell and broke her hip. After the surgery, she had to use a walker. The medications gave her hallucinations and she talked all night. Two years ago (the year 2016) we had to admit her in the hospital because she fainted. The doctors said her brain was not receiving enough oxygen and sent her home to receive hospice care. It has been my worst years. We had to help her bathe, dress, get up. I have no other family but my husband that will help me after work. I do real estate and have been waiting for my husband to arrive home so I can go and do my job. It has been a 24/7 job. In the last 3 months, she has declined. She is now in bed all the time and not able to turn. Pressure ulcers are starting to form. I need to feed her in bed and turn her position every time I can. Thanks to the hospice team I have a CNA that comes 5 days a week in the morning and helps me clean her up. They need to do bed baths. The RN comes every 2 weeks and they help me with medication and supplies.

Even with this help, it is a very difficult task. I and my husband are stuck in the house. We cannot go out together. We cannot take a vacation. Our life is centered around my mother. Every time is more difficult for me to do my job cause mother needs more of my time. It is so sad to see her like this. She used to be so energetic. I just cry every single day. My heart is broken. I love my Mom.

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