Paul from Massachusetts
Hi, I take care of my wife Bobbi. She was diagnosed 2 years ago with "primary progressive aphasia". Bobbi was a teacher and loved her job but could no longer do it. We both retired and we did everything together for a while. As time went on Bobbi lost interest in going out at all so now she spends her days sleeping or watching television. I do all the shopping , cooking etc. I do what I need to do outside the home early in the morning as Bobbi doesn't get up before 11am. My children (4) are all nearby and visit often which is a great help. We have no social life. None of our friends stop to visit. I guess they feel uncomfortable seeing the formally vibrant Bobbi a lost soul. She fell recently and fractured her pelvis which resulted in a Urinary tract infection which caused her to lose all recognition of me and her surroundings. We are both 66 and feel lost. I am sure we could be worse off but it seems like a life of continued decline ahead of us.