Marion from North Carolina
My husband, Jack, passed away June 15th of this year after 11 years of suffering from dementia. Of course, initially he demonstrated only mild cognitive dysfunction, but as time progress, so did the disease. The only real assistance I received was paying out of pocket for a home companion so that I could leave my house for a few hours a week, until Jack finally became eligible for in-home Hospice care. Hospice was a godsend, but unfortunately it comes very late in the game. I feel as though many of us are what I call "in the middle": not wealthy enough to pay for the expense of nursing care in a facility, and not eligible to receive government assistance. I am still worn out and trying to get back to life after being a full-time caregiver for so many years.